Disabling Condition: Hematological Disorders

Hermatological Disorders include the following conditions: chronic thrombocytomenia, myelofibrosis, hereditary telangiectasia, coagulation defects, polycythemia vera, aplastic anemias with bone marrow or stem cell transplantation.

Blood

  1. Have you had lab work and how often?
  2. Have you had transfusions?
  3. Do you take iron supplements for anemia?  If so, why hasn’t that improved your condition?

Our blood circulates throughout our body transporting nutrients, gases, hormones and waste.  It also houses our body’s army of cells which fight infection and platelets which stop blood loss thru clotting.  Blood loss, due to any chronic condition, requiring frequent transfusions (once every 2 months) can be disabling.  Also, diseases such as sickle cell (an inherited deformity of the red blood cells) and aplastic anemia (failure of the bone marrow to produce blood cells) may also be found disabling.  A diagnosis alone, however will not establish disability.  Sickle cell must cause frequent (3 times in 5 months) painful crises, extended hospitalizations (3 times a year) or severe anemia.  Aplastic anemia must be severe enough to require a bone marrow or stem cell transplant.

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Craft Ideas for Summer Fun!

Summer is winding down and your kids need some end of summer fun activities to keep them busy with this last bit free time. We have a short list of some  at home crafting ideas we thought we would share with you to do with your kids. Here are our top favorites!

First, we will start with a couple of fun cooking activities you can do with your kids:

1. Hot dogs with noodles in them, why not? We saw this idea online and thought this was really fun for the kids. Cut up some hotdogs and stick the uncooked spaghetti noodles through the hot dogs, then boil to cook. When they are finished cooking it looks silly and fun for the kids to eat.
2. Healthy and fun popsicles! You can easily make popsicles at home with any fruit juice, or you can try chocolate milk and/or strawberry milk. Another healthy option is to use a cut up banana, this way you have no preservatives.

Next, we will focus on experiments you can do at home that are safe with adult supervision, and fun for kids and science lovers of all ages.

1. Boiled eggs anyone? Learn to suck a boiled egg in to a bottle and get it back out! Take a boiled egg and get a bottle that’s opening is comparable in size to the egg, light a piece of paper on fire and when it is burning put it in the bottle and then put the egg on top. The egg will get sucked in to the bottle and the fire will go out. To get the egg out of the bottle you have to turn the bottle up¬side down and blow in to it, the air will expand pushing the egg back out of the bottle. Very neat trick!
2. Explosions are fun! Make a volcano explosion experiment. Get a container of some kind ready to hold liquid. First put baking soda into the container, then pour in a little vinegar and watch the reaction occur. Eventually it will look like an erupting volcano!

We hope you choose to enjoy some of these fun DIY family activities with your kiddos soon. If you do, please send in photos of you and your kids and we will try to feature you in our future newsletters. Also, be sure to read next month for the six remaining at home craft projects!

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Disabling Condition: Skin Disorders

Conditions covered include ichthyosis, bullous disease, chronic infections of the skin or mucous membranes, dermatitis, hidradenitis suppurativa, burns.

Skin

  1. Do you have skin lesions on your body (which do not respond to treatment)? If so, where?
  2. Do you have skin lesions that flare, i.e. not all the time but episodically?  If so, what is the duration and frequency of flare ups?
  3. Are these skin lesions painful, swell and/or require you to modify your dress and/or apparel?

Our skin is our largest organ, separating us from the outside world and protecting us from bacteria, viruses and extremes in weather. However, this protective coating can itself become diseased or damaged by these same elements.  Many skin disorders are episodic or recurring due to unavoidable exposure.  Social Security will look at the frequency of lesions, outbreaks or flares to determine severity, but does not define how frequently the episodes need to be documented.

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Disabling Condition: Digestive Disorders

Digestive disorder conditions  include gastrointestinal hemorrhage, hepatic (liver) dysfunction, inflammatory bowel disease, short bowel syndrome, malnutrition.

Liver/hepatitis C

  1. Have you had a liver biopsy?
  2. Does your doctor take your blood?
  3. Do you have bloating and pain associated with liver disease?
  4. Do you drink alcohol?
  5. Have you been on interferon?  If so, did you have side effects?

Stomach and Voiding problems (Crohn’s, colitis, gastritis, irritable bowel)

  1. Do you have incontinence?  If so, what is the frequency and what accommodations are needed to manage it, i.e. need to be near bathroom, have accidents even with wearing an “attends”?
  2. Do you have to wear an “attends”?  If so, do you have trouble paying for them?  Also, are there problems associated with using them such as the smell and the need for long bathroom breaks to change and deal with them?
  3. Have you seen a gastrointestinal doctor who has diagnosed your disorder?

Our digestive track begins when we take in food (at the mouth) and ends when we eliminate the waste (anus) and includes all the organs along the way (esophagus, stomach, small and large intestines, etc.)  These various organs are all involved in breaking down the food and insuring that the nutrients are properly absorbed.  Malfunctions often cause blocked blood flow within the system leading to bleeding, obstructions leading to infections, the build-up of harmful waste that can cause damage, and organ failure.

Some diseases of the digestive system are episodic, such as Crohn’s and can be disabling due to frequent hospitalizations (twice in 6 months) to treat obstructions, damage and significant weight loss.

When the bowels have to be treated by resection (removal of the dead and/or infected parts of the intestine) the remaining bowel may significantly alter the ability to eat normally.  Social Security will consider all of these significant problems as severe and potentially disabling.

Liver disease can progress to an irreversible condition called cirrhosis.  This condition is often associated with ascites (fluid in the abdominal cavity) or hydrothorax (fluid in the lung) which can be seen by a doctor on examination.  Abnormal blood work (look for abnormal findings of albumin and INR) associated with this condition can also indicate advanced liver disease.  When these are established in the medical record, Social Security will find the condition disabling.

But prior to liver cirrhosis, the liver may be diagnosed as fatty or fibrotic (scar tissue).  This damage is reversible and if caused by alcohol consumption, Social Security will not find the damage disabling.   By contrast, cirrhosis will get worse with alcohol use but will not get better by abstinence.  Social Security will evaluate the severity of liver disease due to alcohol use with this in mind.

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